Hello all
sorry for the lack of posts I have had porblems loging in, however all is almost well,
Merry christmas to everyone,
in other news my camera has broken :( and stories well resumme next week.
Monday, December 25, 2006
Tuesday, December 19, 2006
Roehampton University
I have had an interview at Roehampton University, this of course meant that I got to look around the campus, mete the staff etc. I thought it was great. The uni is split into colleges which admitdly is an old way of segmenting a uni, but I can see how it would be bemofocal, also each college has a denomination or religon such as Methodist and Roman catholic although with todays modern socity it dosnt make much diffrence other then for history although there ios a chapel and muslim prayer rooms, the campus is huge I think its about 26 hecters I dont know how many football pitche sthat is but apprently golf courses are 100 hecters??
The uni is old and so are some of the buildings but there are also many new ones, some of the halls sound as if they have a lot of charctor which I think is lovly for example there is a converted stables. However there are also newer buildings too. The staff were very friendly and on the computing course I looked at about 8-9% aprox would be mature students.
I also meet the disbaillities officer I aws impreesed that the support is decided by not only head of support but there is also a SENCO ( special educational needs Coordinator) type figure for each schol provoiding subject specific advice.
The uni is old and so are some of the buildings but there are also many new ones, some of the halls sound as if they have a lot of charctor which I think is lovly for example there is a converted stables. However there are also newer buildings too. The staff were very friendly and on the computing course I looked at about 8-9% aprox would be mature students.
I also meet the disbaillities officer I aws impreesed that the support is decided by not only head of support but there is also a SENCO ( special educational needs Coordinator) type figure for each schol provoiding subject specific advice.
Tuesday, December 12, 2006
NEXT WEEK
Hi all
Just to let you know that next week Im out and about Im off to London,Norwich and Lowestoft so cehck back for my as per usual daily update.
Just to let you know that next week Im out and about Im off to London,Norwich and Lowestoft so cehck back for my as per usual daily update.
Monday, December 11, 2006
Tuesday
a day in the life
1:27am I went to bed at about 7pm last night beacuse I felt sick woke up this morning and started work on my homework for Shaun
4:30am after interlacing homework,guitar practice and CD listening I finished up and printed my work, had a rest but couldn't sleep so did more of the samealso did some video editing.
7:30am worrying about the loss of my green portfolio for key skills
7:52 wrote the blog
8:00 made and ate breackfast
8:07 played my guitar
08:15 wenet to college
0850 arrived for key skills
1015 breack , couldnt decide weather I wanted a drink or not
1045 Dermots classs, I like this lecturer but find the room distracting
1200 Lunch time
went to town, and got stopped by save the children and then got a roll and carmel cake, I often find it diffcult to divert from what I planned out so with my "tuna and swettcorn white sub" I also have a "bun with no fruit" but they dindt have anywya so I had to have somthing else a carmel cake to pick somthing for me is an achivment
1300 arrived back at college
1:27am I went to bed at about 7pm last night beacuse I felt sick woke up this morning and started work on my homework for Shaun
4:30am after interlacing homework,guitar practice and CD listening I finished up and printed my work, had a rest but couldn't sleep so did more of the samealso did some video editing.
7:30am worrying about the loss of my green portfolio for key skills
7:52 wrote the blog
8:00 made and ate breackfast
8:07 played my guitar
08:15 wenet to college
0850 arrived for key skills
1015 breack , couldnt decide weather I wanted a drink or not
1045 Dermots classs, I like this lecturer but find the room distracting
1200 Lunch time
went to town, and got stopped by save the children and then got a roll and carmel cake, I often find it diffcult to divert from what I planned out so with my "tuna and swettcorn white sub" I also have a "bun with no fruit" but they dindt have anywya so I had to have somthing else a carmel cake to pick somthing for me is an achivment
1300 arrived back at college
Monday's story
Hello all, as its monday I have a story for you, yestrday ( sunday) I went on a trip on the merolink, some photographs of which can be viewed by going to my flickr site (see the links section on the left of this page).
A long while ago before Dralik’s could fly, there was a Dralik who nobody liked, All the other Dralik’s were very cruel to him.
They would hide the entrance to the lift so as he could not go up the stairs and laugh at him as he cried Then one day a fairy somehow got in through a open window she wasnt an ordinary fairy she was old and tired, when a fairy retires they’re last magic spell is always the most powerful, This fairy was reaching the age of retirement and wasn’t sure what to do to end as she saw very few soles fit for magic, but on this particular day she saw this Dralik who nobody wanted around and though Hmmm, she waved he magic wand and sprinkled fairy dust on the Dralik then POOF the Dralik was transformed into a good well meaning Dralik known as Darlisa,
well as all Dralik’s are male they were of course very interested in this new female Dralik, and fell head of heels in love, but because they hadn’t had any respect for the now Darlisa they were out of luck, the Dralik’s realised the errors of their ways and as they watched the fairy retire and Darlisa go out into the world saving others from wandering Dralik’s they started to cry, as Dralik’s are electronic they exploded. When DR who the new 2005 show was made Tom Baker in particular showed some great concerns that Dralik’s should be included and so he and all the other ex DR who’s went back in the tardis to before this story began and brought back 2 Dralik’s they were cloned and genetically modified to fly so as they could op up stairs, this was important as story lines without stairs were hard to find these days.
This by the way is why Tom Baker narrates little
This story came from my Hero's and villains project for which I had to design a poster, pictured right. I created other characters too called Robus, the captin and futusoc. Currently though only Darlisa has a story.Do you think they should all have stories?
next week's story will be about Dinah the cat and her untold adventure,
by the way please do comment you don't have to register just click the comment button at the bottom of the page, Id love to know what you think other then my spelling is bad (hehe), particularly if you have any thoughts about my memoir entry, thanks to PAD by the way as he was the first ever to comment.
Saturday, December 9, 2006
My Memoir
Im writinga memoir beacuse I think its important that what happeens to people such as myself is brought to light, and I hope it will provide comfort to others below is an exert please tell me what you think
the names have been changed this was writtern about my first year in high school Id of been 12.
the names have been changed this was writtern about my first year in high school Id of been 12.
Tisha's elder brother called Juice, was in year 9. Even the teachers called Juice, instead of Antony.
Two other girls called Clara and M, were also in year 9 and as Tisha's family hated me and their next door neighbours and mary it was only fair that everyone else got their fair share in the hating department to. Juice was popular so him hating me meant so did everyone else.
So began a great deal of time spent in toilets.
Mhad a shaven head with a pony tail and Clara had black frizzy hair, as well as locking me in the toilets they also enjoyed such pursuits as tripping me up on such a frequent basis that I felt scared walking around when not in class. They also called me names and harassed me over the need to use the LSC or as they called it little spastics centre ( leraning supporrt centre), they got their delightful friends to administer more of the same. I got round the toilet thing for awhile by only using toilets in class times, to do this required me to get my planner ( a dairy all pupils had ) signed by the teacher whose class I was in, eventfully after a full page of signatures they started to complain, the teachers knew about the bullying but did very little to prevent it. One thing I could do safely at break times was go to the LSC ( learning support unit) which was a room used for teaching and supporting students with special needs.Bit of course I then got harrased for this."
(c) Robyn steward 2006
Friday, December 8, 2006
Do you Boogle?
Hello
Heres a nice word Boogle, perhaps google should rename the Blog search to Boggle Hmm praps I should surggest it NOT!
but I like the word anyway
yesterday was my CISCO Chapter 4 exam I got 65% never mind, I think I might resit it, I know where some of my mistakes were, Im not doing another text until after christmas but Ill consider resiting next week or doing a mock or somthing.
Anxity
Most aspies and autie's seem to have problems with anxity me includuded.
you get a thought and you cant concentrate on anything else like the gig thing ( see the reality of mid week gig post), that caused me anxity I dindt want to let my mate down but on the other hand it didnt seme fesiable to me the result was that I couldnt sleep I had probelms with my CP it was horrible but thats what happens abxity isnt just a mental reaction its physical too, and it changes your preseption of everything,I think its like being on the brink of sensory overload or anger most of the time.You jus cant cope.When I say anger the way somone on the spectrum experiances is quite often as though the anger has taken your mind over you cant be comunicated with you can just yell and when anxious your dangrously close to becoming angry beyond communication.
So what about you guys, what are your experiances of this ? do they differ from mine?
Heres a nice word Boogle, perhaps google should rename the Blog search to Boggle Hmm praps I should surggest it NOT!
but I like the word anyway
yesterday was my CISCO Chapter 4 exam I got 65% never mind, I think I might resit it, I know where some of my mistakes were, Im not doing another text until after christmas but Ill consider resiting next week or doing a mock or somthing.
Anxity
Most aspies and autie's seem to have problems with anxity me includuded.
you get a thought and you cant concentrate on anything else like the gig thing ( see the reality of mid week gig post), that caused me anxity I dindt want to let my mate down but on the other hand it didnt seme fesiable to me the result was that I couldnt sleep I had probelms with my CP it was horrible but thats what happens abxity isnt just a mental reaction its physical too, and it changes your preseption of everything,I think its like being on the brink of sensory overload or anger most of the time.You jus cant cope.When I say anger the way somone on the spectrum experiances is quite often as though the anger has taken your mind over you cant be comunicated with you can just yell and when anxious your dangrously close to becoming angry beyond communication.
So what about you guys, what are your experiances of this ? do they differ from mine?
Wednesday, December 6, 2006
MTN
What is MTN
MTN stands for multi textured navigation, its the name Ive given to my project that I am currently working on, the project is 2 years long and started in part last september.
MTN Is a Resource pack for anyone with an ASD Autstic Spectrum Disorder who wants to go into Higher Education.The pack is also acting as my Final Major Project which is like a dissertation but at level 3 so basically a project which incoprates diffrent aspects of my course.
The pack will contain 3 things.
1. A video diary I started out writing a report about every uni that I visited, then I had a meeting with UCAS and started doing an audio diary, in march this year I bought a video camera and thus it became a video diary, Im also quite a keen photographer ( hence all the photographs) so I am intergrating stills into this project thus I can put any intresting audio clips over the top, and I can narrate my writtern work, the video diary follows every aspect of the pre application process, so from deciding what I want to study to visiting uni's and the travel and cost that is involved/
2. Workbook a set of worksheets for students to fill in that encourage them to think. For example on the below video diary entry ( see Tuesday below) the worksheet might consist of questions about wheather the student wants to study away from home, or how far they are preapred to travel everyday, The worksheets will of course be phtoocopyable and design as such, so every student can make up their own workbook to keep .
3. Introduction to Asperger's for staff I want the resource pack to be usable by any memebr of staff with a student, the ideal situation of course is that the staff member has had some training in ASD's but thats not always the case so the introduction to Asperger's aims to give staff a short introduction through a short film shot hopfully in first person prespective about the daily experiances of Asperger's although this dosnt cover other areas of the spectrum all that well it would be a too bigger challange to make my first short film about the whole spectrum beacuse its so complex and this film is for staff who dont know anything or know very little about the spectrum and Aspergers, but of course if a stfaf member has already has some training then It ca be used as a refresher, Im hoping to use this in my training session in the future.
MTN's orgins
When I came to think about going to uni I didnt find very much usful infomation there wasnt much first person experaince and some of the infomation I found made me fele like I was already studying for a degree reading it as it was so boring.So I wanted to create somthing that would be fun for people to use, or at least funner then anything currently avliable.
When I first found teh lack of infomation I contacted UCAS and asked if they could provide some infomation, well they didnt really have anything that was helpful but they were preapred to meet with me and disscus the issues that I raised, which they did I aws really pleased to met somone from UCAS and we talked about all sorts of background issues such as the school experiance which is often bad for somone such as myself, we focused mainly on autsim beacuse from experiace of havinga physical disability it is possible to get support quite easily as uni's etc alreday understand the implications of having CP in general of course I cant speack for all of them, but autsim confuses people and its not really supriisng as there is so much bad infomation out there its no wonder people have misconceptions, its not their fault that infomastion is often patchy and inconsitant. So thats one of the reasons why I started training beacuse it is somthing I can do that postivly impacts other people on the spectrum. I also use it as my reasoning behind working so hard on autsim related projects beacuse I feel that those on the spectrum can have such a hard time, I know that equality dosnt run throughout every aspect of life but I feel that there is greater acceptance and awarness of physical disabillities and of some learning disbaility such as Dyslexia. In other worlds tell a teacher your Dyslexic they will at least have some idea what that means even if they dont have the full picture but tell a teacheer your autstic and there often lost. Of course not all teachers fall into the two sceniros above, there are teachers who know about autsim as there are teachers who no very little about Dyslexia but I feel that autsim is misunderstood and therfore if I can provide any kind of usful infomation to others or support to my fellow autstics's then I should.
Current progress
There isnt very much progress just at the moment as I cant start my FMP (Final major project) until febuary so until then Im making diary entries and practising my video editing skills, and song.music composistion.
so please let me know your thoughts.
MTN stands for multi textured navigation, its the name Ive given to my project that I am currently working on, the project is 2 years long and started in part last september.
MTN Is a Resource pack for anyone with an ASD Autstic Spectrum Disorder who wants to go into Higher Education.The pack is also acting as my Final Major Project which is like a dissertation but at level 3 so basically a project which incoprates diffrent aspects of my course.
The pack will contain 3 things.
1. A video diary I started out writing a report about every uni that I visited, then I had a meeting with UCAS and started doing an audio diary, in march this year I bought a video camera and thus it became a video diary, Im also quite a keen photographer ( hence all the photographs) so I am intergrating stills into this project thus I can put any intresting audio clips over the top, and I can narrate my writtern work, the video diary follows every aspect of the pre application process, so from deciding what I want to study to visiting uni's and the travel and cost that is involved/
2. Workbook a set of worksheets for students to fill in that encourage them to think. For example on the below video diary entry ( see Tuesday below) the worksheet might consist of questions about wheather the student wants to study away from home, or how far they are preapred to travel everyday, The worksheets will of course be phtoocopyable and design as such, so every student can make up their own workbook to keep .
3. Introduction to Asperger's for staff I want the resource pack to be usable by any memebr of staff with a student, the ideal situation of course is that the staff member has had some training in ASD's but thats not always the case so the introduction to Asperger's aims to give staff a short introduction through a short film shot hopfully in first person prespective about the daily experiances of Asperger's although this dosnt cover other areas of the spectrum all that well it would be a too bigger challange to make my first short film about the whole spectrum beacuse its so complex and this film is for staff who dont know anything or know very little about the spectrum and Aspergers, but of course if a stfaf member has already has some training then It ca be used as a refresher, Im hoping to use this in my training session in the future.
MTN's orgins
When I came to think about going to uni I didnt find very much usful infomation there wasnt much first person experaince and some of the infomation I found made me fele like I was already studying for a degree reading it as it was so boring.So I wanted to create somthing that would be fun for people to use, or at least funner then anything currently avliable.
When I first found teh lack of infomation I contacted UCAS and asked if they could provide some infomation, well they didnt really have anything that was helpful but they were preapred to meet with me and disscus the issues that I raised, which they did I aws really pleased to met somone from UCAS and we talked about all sorts of background issues such as the school experiance which is often bad for somone such as myself, we focused mainly on autsim beacuse from experiace of havinga physical disability it is possible to get support quite easily as uni's etc alreday understand the implications of having CP in general of course I cant speack for all of them, but autsim confuses people and its not really supriisng as there is so much bad infomation out there its no wonder people have misconceptions, its not their fault that infomastion is often patchy and inconsitant. So thats one of the reasons why I started training beacuse it is somthing I can do that postivly impacts other people on the spectrum. I also use it as my reasoning behind working so hard on autsim related projects beacuse I feel that those on the spectrum can have such a hard time, I know that equality dosnt run throughout every aspect of life but I feel that there is greater acceptance and awarness of physical disabillities and of some learning disbaility such as Dyslexia. In other worlds tell a teacher your Dyslexic they will at least have some idea what that means even if they dont have the full picture but tell a teacheer your autstic and there often lost. Of course not all teachers fall into the two sceniros above, there are teachers who know about autsim as there are teachers who no very little about Dyslexia but I feel that autsim is misunderstood and therfore if I can provide any kind of usful infomation to others or support to my fellow autstics's then I should.
Current progress
There isnt very much progress just at the moment as I cant start my FMP (Final major project) until febuary so until then Im making diary entries and practising my video editing skills, and song.music composistion.
so please let me know your thoughts.
Jobs
As I was bending down to pick up the shower gel today I thought back to how I felt a few months ago while working about 21 hours at a national retailor. I want aware of the physcial effect of the job until I quit last may to allow myself some time off to finish college work at the end of last term. While working bending down used to hurt me, maybe this seems minor but actually if you think of how many times you bend down in a day its a bit of a problem.Now that I control what I do and when I find I am much more agile. When I talked about gigs last week and the effect that this one night could of had on my week I think this work experiance just illustrates it.
In other news, on the veoh site there is a video I made today of a song Ive writtern, the song is called In my Land, and its about autsim. I am still practising it so its nota terribbly good recording but Ill post it on the Blog when Im happy with it.
Tuesday, December 5, 2006
Re:video diray 1
I'm not sure why but I cant write anything on the below post, so the video is my first attempt at video editing on my own, It was taken may last year when I went to Bouremouth uni.Please leave a comment Id like to know what you think.
Key Skills
For those of you who dont know , key skills area goverment innative to unify Brtians work force to the same standard of english, maths and IT to help improve job prospects, Key skills are taught as 3 subjects Application Of Number , Communication and IT. There are 5 levels level 2 is GCSE grade C equivlant and Level 4 & 5 are degree level. In theory key skills should provide an alternative to GCSES unifying everyone's standards of english, maths and ITI have studied key skills for the last 5 years and havnt moved on, although Im not stupid to Train effectivly which from the feedback Ive been getting I seem to be able to do requires intelligence as does getting good marks on my CISCO course ( this term I have got 100, 82, 97 % on my tests). But Im having problems learning the fundermentals such as fractions, decimnals and percantages I struggle reading somtimes and I cant spell very comprehensibly in comparsion to my vocabolrery.
In one key skills assigment bearing in mind I have done key skills for 5 years straight this is not nessasserilly about my current college I had a problem with spelling and grammmer on an essay after the 3rd revision I said to my tutor "were not getting anywhere here are we, we should trying somthing diffrent?" and they said " well what do you think we should do" I replied that I wasnt a teaching so didnt really know about diffrent techquies etc. I didnt say this to be cocky but I wanted to move on and wasnt getting anywhere
Maybe that sounds like somthing small or that Im out spoken, or that it donst matter but to me that attitude really made me angry, I felt that if I was willing to learn tutors should help me and that if I can pin point a problem they should try and help me overcome it instead Im greted with a pesamstic attuitude. When I explained my problems to the tutor I descried as my dysparxia and Asperger's like dominios my Aspergers means I stuggle understanding lanaguge and the dysparxia gives me problems with shiort term memory and sequencing so they knock on to one another but if I tell tutors that they thibnk Im being cocky.GRRR. In the future I would like to be able to help students with simlar problems beacuse Im sure if the infomation wasnt comming from me as the student people would listen,
In other news ...
I spent today feeling cross beacuse I dont like it when people tell me how I should live my life and what I should and shouldnt care about, I think Im 20 so I should be able to decide for myself, I also ran into the autstic langauge barrier again today Somtimes I dont understnad whats being said to me beacuse I get stuck on a word that I cant take litreally and dont have a internal dictionary definition of. I also think to slow to argue with people, maybe tommorow will be better ??
Monday, December 4, 2006
The Witch and the Blue Blob
Unfortuntly I was unable to change the day of the week So Ill tell a story and attach a pictiure of a snail, and tell you about straws.
The Witch and The Blue Blob
Once upon a time there was a witch who lived all alone, one day she decided to make herself a friend she looked all around her and saw a blue blob. she waved her magic wand Once, Twice Three times then... POOF! The Blue Blob was alive he had a long tongue and one foot " Hello" said the blue blob " AAAHRR!!!" cried the witch and hid behind a tree, The Blue blob began to cry he didnt like being all alone. Suddenly the wise owl appeared " You shouldnt be scared of people who are a bit diffrent go and be nice to the blue blob and be friends, and with that the tree and the wise owl dissapared.The witch spoke to the blue blob who said he would like an extra foot so the witch waved her magic wandonce twic three times then. POOF! the bluye blob had an extra foot and they lived happily ever after.
By the way I havent gone completly mad I made the above story for my unit 3 stop animation, next monday there will be another story which explains the reason why Tom Baker is the voice behind Little britan and how Darliks fly.
Now on to today...
I find straws much better then cans, so today after leaving late for breack as I was engrosed in college work ( thats such an Aspergian tarit) I could decide wheather to pay almost 30p more for a Buger King drink or wheather to buy a can, in the end I went to BK and payed an extra 29p beacuse it had astraw and ice, In find its uncomftable to drink fizzy drinks unless there a bit warm, or Im really thirsty or if I can use a straw.I think this is beacuse I'm hypersenstive.
Have a nice day :)
Sunday, December 3, 2006
Here comes Monday
Well tommorow will once again be monday, I was very fortunate today beacuse a friend invited me for dinner :) which was nice, but tommorow Ill have to go shopping, I somtimes find that supermarkets can be a wee bit overwhelming theres such a lot happening all at once, but some days like most other experiances its copable with.
CISCO is still hard havent really had much energ for it today but I will be getting up early in the hope that I can get some studying done sometime its very hard to feel motivated and this chapter is especially hard.
have a good week.
Saturday, December 2, 2006
The reality of mid week gigs
A friend of mine plays in a band and organised his whole tour so as to come up to manchester so I could see him play, but the gig was mid week.
He ened up cancelling beacuse I didnt want to come which made me feel bad beacuse I did want to go but...... I have
Heminplegia ( a form of Cerbel palsy on the left side),
Heminopia( lack of perphiral vision),
Dysparxia ( aka clumsy child syndrome), Asperger's syndrome ( a high functioning form of autsim
Pazaprognosia (sp?) I cant recognise faces)
Lax legament ( the things that hold your bones togeather are floppy)
in reality the above menas
Hemiplegia, Dysparxia, Lax legaments : Cumlative effet of getting tired quick and on a bad day turning purple all down my left side, slurry almost drunken speach,shaky left side, struggling to swallow and chew: lasts from 30 mins-12 hrs +
Heminopia,dim dark places scary as I cant see whats happening, have to make an internal map of layouts
Pazaprognsia (sp?) cant recgonise faces so if Im with friends and I go off to the toilet or for a drink I often cant recongnise them when I come back so I dont know where they are hence I get lost
Asperger's : I dont know what to do in situations somtimes I prefer to stick to what I know , I find making friends who want to do the same things I do hard, I hate being hugged and kissed by friends and family.
So eventually I told my friend I didnt want to go, although I did but as it was on a wendesday I thought that it would have ill effects on me for the rest of the week. I felt really bad. Id like to go to gigs but dont feel capable of going on my own for my own safty.
But I like going out with people I really trust who litreally hold my hand beacuse then I dont have to worry about navigation or getting lost. But of course my friend would be up on stage so thats not very fesiable he was also playing first so couldnt sit me down.
Although open air gigs arent so bad I once went to one in tragular square which was great I got righ up to the front
I guess thats just the reality of being me. Umph :(
My first Blog entry
Hello and welcome to my first Blog post. Thank you for reading.
Today is saturday and Im pretty bored I have been designing my website, studying CISCO and playing my guitar. Ive also bee writing my Personal statment for my UCAS application listening to Marc Bolan and Im sure Pink Floyd later.
I want this Blog to be about life in the flesh not some packaged plastic lie about what life should be like, Im disabled I dont lie about it and Im happy for everyone to know how it effects me beacuse the more peopel who know the more people are aware of disability.
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